Libyan asylum seeker with rare skin disorder detained
Hani Duklef, 32, faces deportation to Libya despite a severe genetic condition requiring specialist US care. His family calls detention a 'death sentence'.
Category : Search result: Recessive Dystrophic Epidermolysis Bullosa
Colin Farrell's friendship with EB survivor Emma Fogarty
Emma Fogarty, 41, lives with severe Epidermolysis Bullosa. Her friendship with Colin Farrell has raised awareness and funds, defying her one-week life expectancy. Read her inspiring story.
Woman with rare 'butterfly' disorder defies odds at 41
Emma Fogarty, one of the oldest survivors of Epidermolysis Bullosa, shares her story of defying medical predictions and her unique bond with actor Colin Farrell. Discover her journey of pain, resilience, and hope.
Colin Farrell's moving tribute to EB sufferer Emma Fogarty
Hollywood star Colin Farrell reveals his profound friendship with Emma Fogarty, who lives with the painful skin condition Epidermolysis Bullosa, in a powerful new book highlighting courage and resilience.
Boy, 12, battles rare skin-tearing condition
A courageous 12-year-old boy endures unimaginable pain due to a rare genetic disorder causing his skin to tear at the slightest touch. His family shares their heartbreaking journey and hopes for better treatments.
Gene therapy breakthrough for 'butterfly skin' disease at GOSH
A groundbreaking gene therapy trial at Great Ormond Street Hospital is transforming lives for children with recessive dystrophic epidermolysis bullosa, offering new hope for a cure.
Gene therapy breakthrough for rare skin disorder
A British toddler with a devastating genetic skin condition has seen remarkable improvements after receiving pioneering gene therapy treatment, offering hope to families affected by the rare disease.
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