Australian influencer Erin Oudshoorn has shared the heartbreaking news of the death of her six-year-old daughter, Lulu, in a poignant Instagram post. Lulu passed away peacefully in the arms of her family, following a long and challenging battle with West syndrome, a rare and catastrophic form of epilepsy.
A Journey of Love and Awareness
Oudshoorn had been documenting Lulu's health journey on her Instagram page, @little.lulu.love, where she chronicled the struggles with spasms and seizures that defined her daughter's life. Diagnosed at just 11 months old, Lulu's condition was described by doctors as incurable, with her brain not forming properly in utero, leading to severe neurological complications.
Tributes and the Lulu Love Project
Through her platform, Oudshoorn launched the 'Lulu Love Project' to raise awareness for West syndrome, a condition that affects many families worldwide. The announcement of Lulu's death has prompted an outpouring of tributes from followers and supporters, highlighting the impact of their shared story.
In her post, Oudshoorn expressed gratitude for the support received over the years and emphasised the importance of continuing to advocate for those affected by rare diseases. The family's journey has shed light on the daily realities of living with such a debilitating condition, inspiring others to join in awareness efforts.
