Jesy Nelson has delighted fans by sharing a heartwarming video of her twin daughter Story saying 'mama' for the first time, declaring that her 'life is complete' as she continues to navigate her children's battle with spinal muscular atrophy (SMA).
A Precious Milestone
The former Little Mix star, 34, posted the clip on social media, showing Story lying under a blanket surrounded by cushion toys. As the baby gazes around the room, she can be heard uttering the word 'mama.' Alongside the post, Jesy wrote: 'Story said Muma for the first time my life is complete.'
Jesy revealed in January that her now nine-month-old twins, Ocean and Story, had been diagnosed with SMA Type 1, a rare muscle-wasting condition. Since then, she has been dedicated to caring for her little ones and campaigning for change.
Campaign for Newborn Screening
Following her twins' diagnosis, Jesy has been advocating for the NHS to introduce newborn testing for SMA1. A late diagnosis meant her children are unable to ever walk. Despite the UK's National Screening Committee rejecting calls to introduce checks for another muscular disease in January, Health Secretary Wes Streeting announced plans in March for more than 400,000 babies to be screened for SMA from October 2026.
Jesy has been liaising with the politician and marked another chapter in her fight with a visit to the Prime Minister's residence, where she snapped selfies and wrote the poignant caption: 'When life throws you lemons...'
While she proudly noted that her campaign has made significant progress, Jesy earlier this month told fans there is still a long way to go, as only certain areas in England will initially carry out the tests. She explained: 'It is a bit bittersweet because basically they are only doing it in certain areas of England, so if you do not live in that certain postcode or part of England then your baby won't be tested for SMA, which is really sad. It's essentially a postcode lottery for your baby which shouldn't be the case. All babies' lives matter, so as amazing as it is there is still a long way to go.'
She added: 'I'm going to keep pushing and trying as much as possible to get this so it is in all areas of England and then also the petition you all kindly signed getting 100,000 signatures is now going to be debated in parliament which is just amazing. That is all down to you guys so thank you so so much, you're incredible and I am so appreciative of all the support and love.'
A Proud Moment
At the start of the video, Jesy celebrated the 'major milestone' and expressed pride in the campaign's progress. She said: 'I just wanted to come on here to share some information and news that I have heard over the last couple of days. As you know I've been campaigning to try and get SMA as part of the newborn screening here in England. My girls were diagnosed with SMA Type 1 and unfortunately they weren't tested at birth because it wasn't here in England. They have now decided to roll that out in October for all babies in England to be tested at birth for SMA, which is absolutely incredible. I know it is a really big moment for the SMA community because this has been going on for years trying to get this passed, so yeah it is a real proud moment.'
The singer has campaigned tirelessly for the NHS to expand its screening to check for spinal muscular atrophy following her own experience with her daughters. The pilot will see an estimated 400,000 babies tested in England.
Car Theft Incident
Jesy's recent outing comes after she offered a £10,000 reward when her car, filled with hospital equipment for her twins, was stolen from her driveway. In an Instagram post, she told followers that her Black Defender, with registration JJ73SSY, was taken along with vital medical gear. She wrote: 'My car got stolen off the driveway in the early hours of this morning, if anyone sees a black defender, reg plate JJ73SSY, please if any of you have seen or know any information, DM me or contact the police. I have so much of my girls' hospital equipment in there that's really needed.' The car was stolen in Brentwood, Essex, with the last sighting in the Chelmsford area.
