Television presenter Emma Willis has publicly revealed she unknowingly lived with a serious heart condition for 48 years, a diagnosis that came as a complete shock during a routine check-up.
What is an Atrial Septal Defect?
The condition, an atrial septal defect (ASD), is a congenital heart defect, meaning it is present from birth. It involves a hole in the wall, or septum, that divides the two upper chambers of the heart. This opening allows blood to flow abnormally from the left atrium to the right, which can create a distinctive swishing sound known as a heart murmur.
The exact cause of ASD remains unknown, and while it can sometimes be detected in the womb or during childhood, many cases, like Emma's, go unnoticed for decades. The British Heart Foundation (BHF) states that while many small holes close naturally in childhood, others persist into adulthood.
Symptoms and Potential Dangers
In adults, the symptoms of an undiagnosed ASD can be subtle and easily mistaken for other issues. Key signs highlighted by the BHF include:
- Shortness of breath, especially during exercise
- Persistent fatigue and reduced stamina
- Recurring lung infections
- Irregular heartbeats or palpitations
- Feelings of light-headedness or fainting
"The mental shift was the biggest challenge, because when you hear those words, it terrifies you," Emma shared about the moment she was diagnosed in January 2025.
If left untreated, the condition forces the heart and lungs to work harder. This extra strain can lead to severe complications later in life, including heart failure, stroke, or pulmonary hypertension—a type of high blood pressure affecting the lung arteries.
Treatment and Raising Awareness
Treatment depends on the size of the defect and the severity of symptoms. Small holes causing no issues may simply be monitored. However, larger holes or those causing symptoms typically require closure, often through keyhole surgery or, in some cases, open-heart surgery.
Emma underwent a surgical procedure just two months after her diagnosis. "From diagnosis to surgery was the most present I have been in my life," she said. "I'm hoping that sharing my story will help others going through something like this."
She is now supporting a major new BHF campaign to raise awareness of heart conditions. To mark its 65th anniversary, the charity is installing 65 red benches across the UK, each dedicated to a heart disease survivor with a personal message.
The BHF strongly advises anyone experiencing potential symptoms to consult their GP for a check-up, emphasising that early detection is crucial for preventing long-term damage.
