Former Little Mix singer Jesy Nelson has shared devastating news with her fans, revealing that her eight-month-old twin daughters have been diagnosed with a severe and rare genetic condition.
A Mother's Heartbreaking Diagnosis
The 34-year-old star, who welcomed twins Ocean Jade and Story Monroe Nelson-Foster in May 2025, explained in an emotional Instagram video that her babies have spinal muscular atrophy (SMA) Type 1. This life-limiting illness affects every muscle in the body, from limbs to swallowing, and is not currently included in the standard NHS heel prick test for newborns.
Jesy described how concerns first arose when her mother noticed the girls were not showing as much leg movement as expected for their age. Initially, she was advised not to compare her premature babies to others, but persistent issues with feeding led her to push for further medical investigation.
The Fight for Treatment and Support
After three to four gruelling months of appointments, the twins received their diagnosis at Great Ormond Street Hospital. Doctors informed Jesy that her daughters would likely never walk or regain full neck strength. "If it’s not treated in time, your babies' life expectancy will not make it past the age of two," the singer recounted.
Thankfully, the twins have now received urgent treatment, which Jesy says saved their lives. Her world has since been transformed, with the hospital becoming a "second home" and forcing her to rapidly learn nursing skills to care for her children. "I've had to do stuff no mother should have to do to their child," she said, holding back tears.
Celebrity Friends Rally Around
The announcement prompted an immediate outpouring of support from fans and famous friends. Love Island's Shaughna Phillips called Jesy a "superwoman," while singer Kamille and Traitors winner Leanne Quigley sent love and prayers. Ben Ofeudu, former partner of Vanessa Feltz, offered messages of spiritual support.
This challenge follows an already difficult pregnancy for Jesy, during which the twins were diagnosed with twin-to-twin transfusion syndrome (TTTS), a complication she documented on social media.
Despite the prognosis, the brave mum remains hopeful. "I truly believe that my girls will defy all the odds," Jesy stated. "With the right help they will fight this." Her story has highlighted the critical importance of early diagnosis and treatment for SMA, a condition many parents and medical professionals may not immediately recognise.
