Former Little Mix star Jesy Nelson has shared heartbreaking news about the health of her infant twin daughters, revealing they have been diagnosed with a rare and serious genetic condition.
Devastating Diagnosis for Infant Twins
Nelson's daughters, Ocean Jade and Story Monroe Nelson-Foster, have been diagnosed with Spinal Muscular Atrophy (SMA) Type 1. The singer publicly confirmed the news on Sunday 4 January 2026, before appearing in an emotional televised interview on ITV's This Morning on Wednesday 7 January to discuss the family's situation in detail.
Spinal Muscular Atrophy Type 1 is a severe neuromuscular disorder that affects the nerve cells controlling voluntary muscles. The condition is progressive and, in its most serious form, can prevent children from ever being able to walk, sit unsupported, or in some cases, even breathe without assistance.
'I Want to Be Their Mother, Not a Nurse'
During her appearance on This Morning, a visibly distressed Nelson opened up about the immense emotional and practical challenges the diagnosis has brought. "I want to be their mother, not a nurse," she stated tearfully, articulating the painful shift in her role as a parent.
The singer revealed that the reality of the condition has required her to rapidly adapt to a demanding new care routine. She disclosed that she has already undergone training to insert a feeding tube for her daughters, highlighting the immediate and profound lifestyle changes the family is facing.
Navigating a Rare Genetic Condition
The diagnosis of SMA Type 1 marks the beginning of a difficult journey for Nelson and her family. The condition is caused by a missing or faulty gene and affects approximately 1 in 10,000 births, classifying it as a rare disease.
While there is no cure, treatments have advanced in recent years, including gene therapy and medications that can help manage symptoms and slow progression. The early months and years are often critical for intervention. Nelson's candid discussion has brought significant public attention to the realities of caring for children with complex medical needs and rare genetic disorders.
By sharing her family's story, Jesy Nelson has joined a community of parents advocating for awareness and research into Spinal Muscular Atrophy, while also confronting the personal grief and adaptation that such a diagnosis inevitably brings.
