Family's £8M Fight to Cure Daughter's Rare 'Frizzle' Disease
Everly Green, 8, is a prisoner in her own body due to rare FRRS1L. Her family is raising millions to develop a gene therapy cure after big pharma deemed it unprofitable. Read their story.
Category : Search result: FRRS1L
Girl, 8, trapped in own body by rare 'Frizzle' disease
Everly Green, 8, is a prisoner in her own body due to rare FRRS1L. Her family is raising millions to fund a cure after big pharma deemed it unprofitable. Read their story of hope.
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