Imagine waking up every day feeling like your skin is on fire—no flames, no visible wounds, just an unrelenting, searing pain. For those suffering from a rare and agonising condition, this is their daily reality.
What Is This Mysterious Condition?
This little-known disorder causes extreme burning sensations across the body, often without any external cause. Patients describe it as being doused in invisible flames, with no relief in sight.
The Invisible Pain
Unlike typical burns, there are no scars or blisters—just an unbearable, constant torment. Many sufferers go undiagnosed for years, dismissed by doctors who can't find a physical explanation.
Why Is It So Poorly Understood?
Due to its rarity, research is severely lacking. Medical professionals struggle to pinpoint the cause, leaving patients without effective treatments.
The Fight for Recognition
Advocates are pushing for greater awareness and funding to uncover the mechanisms behind this debilitating condition. Without proper research, sufferers remain trapped in a cycle of pain.
Is There Any Hope?
While current treatments offer limited relief, experts believe that increased attention could lead to breakthroughs. For now, those affected must endure what many describe as a living nightmare.